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Old Sun May 12, 2013, 06:39 PM
Robi1Knobi Robi1Knobi is offline
Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98

I really have no complaints about side effects, but now I have acne on my face, some on neck & back. Its been almost 2 years on the study, so hopefully the acne will go away once I'm weaned. My blood counts haven't been this high in 12 years (since pregnancy with my daughter jump started this disease), and I've been living it up & feeling GREAT! I imagine alot of you are feeling good too, because noone else is hardly writing ). xoxoxoxo
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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