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Thanks for all the info. The B12 tested low and that's why I'm on the injections. It's the third time I've had a course of B12 for deficiency. The Folic Acid and B6 is a bit more confusing. The haematologist said to take it, the Prof of Metabolic Medicine said not to take it, the GP said to take it and the Physician says it doesn't make any difference.
I've just had a phone call from my GP.....Hb 69, WCC 0.7, neuts 0.09, platelets 130 (something good at least). I guess it's another transfusion tomorrow.
Tytd, the optometrist said the appearance of the optic nerves was in keeping with previous optic neuritis and demyelination. I am not surprised, I knew that when I looked at someone and their head was missing that something was very wrong. I told her about the neuro disease I have (pretty obvious something is wrong when you turn up in a wheelchair) and she thinks its all connected but is leaving it to the specialist to investigate. I have been sent to the major eye facility in my State which is well regarded for its work and research....pity the waiting list is so long. On the plus side, it's located on the same campus as the hospital I go to.
Regards
Chirley
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