The important thing to remember is not to let positive thoughts drown out reality. There are many forms of MDS and none should be dismissed lightly. In my case it was extremely important to act quickly. I was golfing (walking the 18 holes) right up until I had the stem cell transplant. I was feeling great. You do what you can control, but there are other things you just have no control. Yes, it is important to have as much close support as available.
Did any genetic mutations show up in the bone marrow biopsy?
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.