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Old Mon Dec 12, 2016, 05:50 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 830
Watching and waiting is good 90% of the time. Then of course if there's an unwell day, I guess we all wonder if the "sword of Damocles" is about to fall! That's where the word "watch" becomes extra important. My last BMB was nearly 3 years ago and it was horrible, with no sedation and 5 attempts to get through the hip bone, however I personally think it's time for another - just for reassurance if anything. I'm hoping my haematologist will agree.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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