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Old Mon Mar 12, 2018, 09:56 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 830
Not sure who you're particularly talking to, David, but anyway I seem to be about the same. My platelets dropped back a bit below normal last time for the first time in quite a while, but it might just be a temporary aberration.

I'm still having Intragam. Have been doing it 6 weekly for the last 12 months to give my tired veins more of a break, but am going back to 5 weekly as I was starting to feel unwell a week or so before it was due.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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