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Old Sun May 5, 2019, 01:25 AM
quantpsyc quantpsyc is offline
Join Date: May 2017
Location: Leland, NC
Posts: 16
David, wonderful news to hear you are doing so well. My husband is at Day t-2, last day of chemo in morning then TBI next day, then MUD transplant on Tuesday May 7. He had 5 months of decitabine which put him in remission and brought his blasts down enough for transplant. Starting to struggle a little with nausea and fatigue, but still walking 2 miles a day. His care team at Duke is awesome.
Hope you continue to do well!
Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
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