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Old Thu Dec 17, 2009, 09:13 PM
tytd tytd is offline
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Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
low platelets

Hi Birgitta,
Thanks for your always informative responses and links. I think that you are exactly right, no one can tell me what the best course of action is here. The NCCN guidelines/recommendations for refractory thrombocytopenia in MDS(If that is what I have??) are hypomethylating agents, then possibly immunosuppressive therapy if a candidate, and then BMT if a candidate. However I think we are of like mind when it comes to worrying about adverse reactions to meds. As has been said, "better to deal with the devil you know than the devil you don't know." I hope your platelet count of 44k stays stable. That was my reading back in 2001.
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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