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Suzanne,
According to my doctor, for some reason which I don't understand, but maybe they do, MDS can cause no iron marrow. Both my BMB's showed no iron marrow, nada, zero, zilch. However, my ferritin and other iron tests (serum iron, TIBC, etc.) are all normal. The first hematologist I saw put me on iron, but when I went to a doctor with much more MDS experience, she immediately took me off it. I wish I understood it better, I have tried researching but have come up with nothing to explain how the MDS can cause no marrow iron. Does anyone understand this?
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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