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Old Sat Dec 29, 2018, 04:04 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 718
Hi,

Sorry that I can't comment on the Solaris.

Do you still have AA and iron deficiency? Are your counts still low or have they recovered while on Solaris? Have you been feeling this way the entire time that you have been on Solaris or is it a more recent development?
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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