View Single Post
  #1  
Old Wed May 1, 2019, 10:40 AM
meagansmom meagansmom is offline
Member
 
Join Date: Dec 2018
Location: Georgia, USA
Posts: 6
MDS and frequent hospitalizations

My mom was diagnosed mid November. She is now in the hospital, counting the initial hospitalization for the 6th or 7th time since diagnosis.
Anemia, neutropenic fever, flu, pneumonia, infection, now UTI.

Her labs were looking better. Her follow up BMB showed improvement. But just after that she was hospitalized and her labs are not doing that well. The doctor said if he hadn’t seen the biopsy results he would think the Vidaza wasn’t working. He has held the Vidaza due to labs and illnesses. But he last said when she restarted it would be 5 days of treatment instead of 7....but it has been 8 weeks now and she can’t seem to get well enough to restart.

I am just not understanding all of this. She doesn’t want to die but she HATES the hospital and hates is an understatement. I am thinking she may just decide not to continue with treatment of it means continued repeated hospital stays.

Any insight or information or advice would be helpful.
Reply With Quote