Thread: Little update
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Old Thu Mar 5, 2009, 11:42 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Valproic acid

Hi Lynn,
I have read about patients with the MPD disease myelofibrosis that developed PV after different treatments but never about MDS patients before I read your post.

The most common drugs for PV are Hydrea (that can give AML) and Pegasys. Both are probably much too strong for you. Many PV patients are only treated with phlebothomies or baby aspirin to prevent clotting - perhaps you could wait with treatment more than a couple of weeks and hope that the Hb will decrease.
Kind regards
Birgitta-A
Dx with MDS May 2006 and myelofibrosis June 2006 - Sept 2007. Still a member of one support group for MPD and two for myelofibrosis - I read the posts 7 days a week.
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