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Old Mon Oct 21, 2013, 01:16 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Sidhartha,
Good that your father otherwise is healthy !

The figure 9.5 is his hemoglobin (HGB) - it is very important to follow his HGB, his white blood cell count and his platelets. Keep your own report.

It is not positive with 10 to 12% blast cells in his bone marrow - less than 5% is OK. This means that your Dad has MDS RAEB-2. Good that he is treated with Vidaza. Look out for infections that should be treated at once! Contol his temperature twice a day.

Different types of MDS have different risks of developing AML. Patients with low risk disease like RA have a very low risk while patients with RAEB-2 have a greater risk. If the blast cells increase to 20% the diagnose is changed to AML.

It is almost always best to be treated by a MDS specialist.
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006, supportive therapy with transfusions, drugs for iron overload and Neupogen for low White blood cells until 2010. Thalidomide + Prednisone with positive results until July 2013. Now trying Revlimid.
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