Marilin-
YES YES YES, I echo everything Sandra said. There is surely something else going on here. You didn't mention where you are located but you should definitely get a second opinion. Fanconi or dyskeratosis congenita or something environmental has got to be considered here.
If you post what city you are in, I'm sure this group can recommend a center of excellence near you.
Wendy/mom to Grant now age 16
dx 12/4/98 AA
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