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Old Thu Feb 2, 2012, 07:11 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
I would just say that you should make sure you are working with a bone marrow failure expert - just in case. Most of our "local" hematologists are not specialized in these diseases enough to make important decisions.
But it does sound like you should
"live your life" right now, but keep tabs on things.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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