Thread: azacitidine
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Old Sun Nov 20, 2016, 02:27 PM
edwardbear edwardbear is offline
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Join Date: Dec 2015
Location: Auckland, New Zealand
Posts: 4
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Quote:
Originally Posted by Faye R View Post
Yip-ee at long last a New Zealander how are you going on Azacitidine. A decision was made to have the Azacitidine stopped Dec 2015 due to Toxicity I had been on it for 13 months and all that time had only three transfusions now back to one every three weeks bugger.
DX MDS RAEB-2 16% blasts dropped done to 8% after 3months of Azacitidine don't know what they are now.
Faye,
I am now the longest Patient in Auckland on Azacitidine. Its nearly 2 & a half years now. Have not needed a transfusion since 5th cycle. My treatment has been 7 days every 28 days (usually Mon-Fri then Mon & Tues). The Redness you experience can be best relieved with Calamine Cream - but not cured. I am aware of some patients who use a rotation of sites - stomach, arms, thighs (but in my experience legs are not pleasant).
I may be Contacted on <brian@teddybearsgigguide.net.nz>
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