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Old Thu Aug 27, 2009, 06:25 PM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 721
Hi Sheryl,

It's been a year since my diagnosis with bone marrow failure, and I still don't have a definitive diagnosis of AA or MDS despite 5 BMB's and consults with 6 different experts.

MDS and AA are overlapping diseases. The good news is that ATG can be effective in cases of hypocellular MDS that behave like AA. A young age is a good prognostic factor.

As Marlene pointed out, be sure he is tested for the genetic diseases.

I am curious why they think he has MDS. Does he have chromosonal abnormalities or significant dysplasia?
53 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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