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Old Thu Oct 22, 2009, 02:12 PM
Birgitta-A Birgitta-A is offline
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918

Hi George,
Perhaps you have already seen the MDS Foundation Handbook with info about MDS:

Then you know that MDS are a group of diverse bone marrow disorders. We are all different and it is very difficult to tell you anything about your partner's disease. As far as I understand his disease has hardly progressed at all since 2000 except that his white blood cells are dysplastic - I think he has a very good prognosis.

When I met many other MDS patients at a MDS Foundation PatientForum April 2009 in Stockholm I was very surprised when I heard from other patients that they got their dx more than 20 years ago and these patients had not had a SCT.
Kind regards
70 yo, dx MDS Interm-1 May 2006, transfusion dependent, Neupogen 2 injections/week for low white blood cells. Tried Ferriprox and Exjade for iron overload - now back on Desferal due to lower white blood cells. Asymptomatic.
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