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Hi Shawna,
This is long shot but have they tested him for some of the congenital diseases associated with bone marrow failure. Even though my husband was 50 when diagnosed with SAA, they still tested him for Fanconi, Black Diamond and Dyskeratosis Congentia. Even though you would expect to see the classic symptom and physical trait of each disease appear, sometimes the only symptom is anemia. It's worth ruling these out if they haven't already.
Also, how about heavy metal toxicity like lead, mercury or arsenic?
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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