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Carol,
I posted on your other post. Just saw this and wanted to comment about what caused your MDS. I would guess the radiation for breast cancer, but one can never be sure. I agree with Scott that the doctors we have come across through this journey really don't seem that interested in the why. They don't really ask questions about past exposures, etc.
I hope you come away from Mayo with a few more answers to your questions. I hope they give you an access to contacting them. I guarantee that you will walk out and think of something you forgot to ask. New questions will be forthcoming all along the way. Just remember this forum and hopefully it will be a help to you.
Mary
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good 
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