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Old Fri Sep 21, 2012, 09:34 PM
cdseibold cdseibold is offline
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Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Quick Update on Mayo Visit

Met with Dr late today. Ran late as she was waiting for pathology and chromosome testing.

So the results are in but mixed. The chromosome test found 17q defect on 3 of 20 metapanels. This suggests that yes I do have MDS.

But the pathology results are such that the pathologist said she/he couldn't be sure it was MDS. The pathologist is going to review the slides with other pathologists.How many get to vote? Reminder that my previous pathologist said yes, MDS for sure.

I will get a formal written report and a call from Mayo Dr about Tuesday. Can't wait to see if they all agree on MDS.

More later.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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