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Old Sat Sep 22, 2012, 03:36 AM
cathybee1 cathybee1 is offline
Join Date: Aug 2010
Location: Fort Jones, California
Posts: 399
I found some light reading for you, which suggests that immunosuppressive treatment has had positive results for people with that type of mutation. Don't be surprised if there is not agreement among doctors regarding diagnosis. That's not uncommon. Be sure to request copies of all the reports from your bone marrow biopsies, FISH, etc. The first time my husband and I read one of his, we had to look up every other word. This group literally saved my sanity and helped us figure stuff out.

Don't be afraid to ask questions about your bloodwork, your bmb results, whatever. Everyone here is great, and whining is permitted!
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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