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Hi Beryl,
At MDS conferences that I have attended many of the doctors feel one must stay on Vidaza as long as it is working to control the MDS.
Some patients have been reported to be on Vidaza for many years, they were in the early drug trials with Vidaza before it was approved by the FDA and some are still taking the drug.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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