Thread: help?
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  #10  
Old Wed Mar 21, 2012, 05:06 PM
Karenish Karenish is offline
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Join Date: Feb 2011
Location: Stafford, United Kingdom
Posts: 100
I concur with all the rest. Your doctor has not followed the protocol which is available to everyone on the internet and most top haemotology consultants are aware of it. here in the uk it is normally......
doses of anti viral, bacterial, body scans etc to make sure you have nothing lurking in the system before they start. then you take drugs to make you completely immune suppressed, then there should be a tiny trial dose of the atg, with the crash trolley in situ incase you have anaphylatic shock...if the trial dose causes no problems they then continue over a period of ?5 days (cant remember) then after that regular transfusions until you respond....and continue with some steroids and cyclosporine which is given dependent on your weight...you then wait about 3 weeks to make sure you have no more serum sickness (which is a bit like flu, aches pains, high temp and rashes) once this time period is over you are sent home with your meds to recuperate at home and to wait for marrow to reboot.......mine took 10 months but they normally like it to occur within the 6 months.. It certainly sounds like your doc is not at all sure what they are doing. Please take the advice of others. xx good luck xx but use all the support on here it work wonders, you CAN get through this, keep as positive as you can. xx
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