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Hi,
I was diagnosed with SAA in Dec 2003. I've gone through 2 rounds of ATG and will be on cyclosporin for life. In May I found out that I have MDS and PNH. My MDS blast is small, but my PNH clone is 47%. My chromosomes have mutated, but not the normal MDS mutations. We have found an unrelated donor (10/10), but are waiting to transplant until my counts go out of remission and we have to. We aren't willing to risk the odds at this time. I have a 10 & 11 yr. old and I pray everyday that I get to be around long enough to watch them grow up. I'm here if you need me.
Michelle
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Michelle, 41, SAA, treated with ATG Dec 2003 & May 2006. dx PHN & MDS, May 2009.
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