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Still here!
Hi Caroline,
I forgot that I had posted to this thread one year ago. At that time, my doctor recommended going ahead with a SCT because my ANC was dropping. I stopped working to go through pre-transplant testing and to get things in order at home. Suddenly my counts stabilized and have been stable ever since. Now we just wait and watch. I have blood work done once a month and follow-up visits every three months. When the time comes, my transplant doctor feels we could try Revlimid and buy a little more time. For now, I'm doing pretty good but without a job. My husband feels if I go back to work, my counts will start to drop again. I hope you are doing well.
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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