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Old Tue Aug 21, 2012, 11:41 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I go twice a year to see Dr. Maciejewski at the Cleveland Clinic.

http://my.clevelandclinic.org/staff_...?DoctorID=4362

He is very personable and likes to help. Don't be afraid to call his office.

Dr. Sekeres is also an option.

http://my.clevelandclinic.org/staff_...?DoctorID=4489

The AAMDS.org website has the following information on their on line learning center.

https://live.blueskybroadcast.com/bs...T=944&CAT=1031

Hopefully this will be of help.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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