AAMDSIF is helping recruit MDS patients to participate in an upcoming MDS advisory board meeting. Eligible participants must be 18 years or older, affected by Low or Intermediate Risk MDS and receiving transfusions.
The meeting will take place on May 18th in Washington,DC. The purpose of the meeting is to gain direct patient & caregiver insight into the following areas:
• Care and access to care of MDS
• Preferences on MDS education, news, and resources
• Feedback on a potential treatment for MDS
The advisory board will last approximately 3 hours.
Contact Desiree Ruiters for more information, 301-279-7202 x105 or
ruiters@aamds.org.