Thread: Fanconi Anemia
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Old Fri Dec 16, 2016, 06:18 PM
JeriM JeriM is offline
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Join Date: Feb 2013
Location: Bay Area, CA
Posts: 14
I have almost none of the classic signs for FA. Only some conditions that we now can look back on and say, oh, that's why. They are still running various tests on me, trying to make sense of it. It's very frustrating to not know, because the treatment is completely different (NIH first accepted me, and then turned me down for the Promacta trial).
I am having an impossible time trying to find anyone in my age group (60) with this disease - it is almost always a childhood thing, and they die before they are 30.

Last edited by JeriM : Sat Dec 17, 2016 at 12:09 AM.
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