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Old Fri Sep 4, 2009, 08:55 AM
fibogann fibogann is offline
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Join Date: Aug 2006
Posts: 194
attn: KCBabe

Quote:
Originally Posted by kcbabe View Post
Hi Peter,
My brother is under going ATG treatment, today is day 2 of 5. I'm looking to supplement his treatment. How much of each did you give your son during treatment? How much during the blood count stabalizing phase & how long was that? Was the Dr. ok with it? How is your son doing now and what other alternative remedies have you tried?
Thank you,
Reeran
Hi Reeran,

The supplements taken in the recovery phase were recommended and prescribed by Dr Ba Hoang of http://getwellnatural.com and he sits on the Advisory Board of Allergy Research Group. You can get to know more about him from the writeup on the Allergy Research Group here at the following link:
http://www.allergyresearchgroup.com/...ard-sp-17.html.

We started off the supplements immediately after the ATG. Following is an excerpt from our story as lodged in aplasticcentral's stories section:

"SHARK LIVER OIL THERAPY
====================
The shark liver oil worked to stabilise the falling blood counts and within two weeks started to indicate improvements to platelets, WCC and neutrophils. Beginning from that time onwards, Stan became transfusion independent, as the shark liver oil begin to help his bone marrow function.


HERBS
======
The herbs were in capsule form and as a herbal tea tonic. The herbs and tea worked according to the general projection by the complementary doctor's timing. He told us the herbs worked fast and within 2 to 3 weeks we would see improvements, and it was so. Stan's platelets was the first to improve with 10K increase every 4 days and then lately it jumped 25K a week with the effect of the herbs and shark liver oil working together
We were very concerned about the platelets, because the period for the platelets transfusion was getting shorter and shorter so that every 4 days it was needful to have a platelets transfusion after the ATG. We were prescribed shark liver oil to help in platelets production. Within a week of taking the shark liver oil, the platelets count stayed and improved and no further platelets transfusion were required.

However his haemoglobloin and white blood cells continued to drop, and Dr Ba put my son on Blood Tonic and Blood Well tea. I was told it would take around 4- 5 weeks or so to see the effects of the herbs. Indeed, at the end of 4 and a half weeks after taking the Blood Tonic and Blood Well tea, white blood cell counts and haemoglobin improved and he became free from the red blood cells transfusion. He was treated with ATG on February 2002, and was transfusion independent in late April 2002, and was off all drugs since then, including cyclosporine."

----------------------

During the recovery phase, 600 mg of shark liver oil, twice a day half hour before meals. The standard capsule comes in 1000mg, so it was needful to break the capsule to acquire the necessary dosage. I do not have the dosage for the other herbs handy as it has been more than 7 years since, but I do recall the doctor increasing the dosage based on the response. There is a recommended dosage on the packaging as well, but I'm clear that the dosage was more than that listed on the bottle during the early stages and was modified and adjusted by Dr Ba as the progress became known.

My son has completely recovered. It has been more than 7 years since his episode with AA. He still takes the shark liver oil as a daily supplement, and other herbal supplements from time to time esp to ward off the winter flu as he doesn't go for flu jabs and so on. His blood counts are all normal.

Dr Ba is currently now in Vietnam assisting the vietnames government in setting up a specialised cancer hospital but I understand his associate is practising in San Jose with a clinic that is open for consultation.

I hope my recollection of events has been of some help.

Warmest Regards

Peter Lim
__________________
Peter Lim, Dad to Stan, age 17 at time of dx Feb 2002VSAA; tx. ATG, cyclosporine, predisone; alternative herbal supplm & shark liver oil, off all meds 5/2002 normal blood counts. Only on shark liver oil.
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