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Old Fri Sep 24, 2010, 07:48 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John never had bone pain from the white blood cell growth factors. I think the better it works, meaning that the growth factor is really stimulating and producing lots of white cells, then the potential for the bone pain side effect is greater. And since you are only getting it once a month, it probably lessens your risk. John was getting it daily for a while then 3x/week, then 2x/week.

I wouldn't worry about it at this point but if it does happen, you doc can give you something for it. I know some have used morphine for the pain.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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