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I heard a doctor explain why the causes of diseases like these so often remain a mystery: They can study statistics and look for patterns, but that doesn't necessarily indicate cause and effect. Meanwhile, it's quite often unethical or impractical to do controlled studies to see how people are affected by suspected disease factors.
Expose to benzene and related chemicals is a risk, as you know, but we don't know enough about what else might be a factor. As you discovered, it's not easy to know when we've actually been exposed to dangerous levels of chemicals either.
It's certainly frustrating not to know -- and not to expect to know -- why bone marrow failure entered our lives the way it did.
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