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What to expect post ATG
My doctors are recommending that I make a decision regarding my treatment options quickly. At this stage I am thinking I will go with ATG as I am an only child so BMT worries me.
I have a couple of questions re ATG:
a) after the 4 or 5 days in hospital how do most people feel? I have 2 small children (18 months and 3). I am wondering what my energy levels will be like
b) when do most people cease needing transfusions?
c) how regular are the transfusions post ATG?
I know ATG is different for everyone but the more personal experiences I know the more prepared I will feel.
Re BMT where do people consider the best place for this in the States? I am currently seeing the guys at Cleveland Clinic in Ohio.
What do people think about BMT? Am I right to be as concerned as I am? I have read that mortality rats for my age group are 10 to 20% (I am nearly 36) and this just does not seem like the kind of odds I want to play around with given my little girls.
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