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Even if insurance coverage for getting a second opinion isn't a major concern for you, I'd like to mention that insurance companies that reject claims at first will change their minds on appeal more often that people realize. With an undiagnosed condition associated with such a serious case, I would think you'd have a very good case for insurance coverage of a second opinion, if you go through the required process to ask for the coverage to be reviewed or for a claim to be reevaluated.
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