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Hi Shroob,
I'm glad that your mom is in good hands and that there is a PLAN in place. Having a small PNH clone is a sign that her disease may be immune mediated and may respond to the ATG. It is sometimes used as part of a pre-transplant regimen. So, it sounds like she will be getting the best of both worlds by doing the transplant search in parallel with ATG.
If she does have a transplant, don't be in a hurry to leave the security of being near the hospital for the first 100 days. You will appreciate the monitoring and quick access to experts should problem arise. 4 months is probably a worse case scenario.
Wishing her the best!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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