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Old Tue Jul 20, 2010, 11:10 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Hi Barbara-

I'd love to hear from others who did this trial. When did you do it? I guess fairly recently, if you're still sending back the vials. I was also very impressed with the level of care while at NIH. It made me nervous, though, when I left.... it was like going from a cocoon environment to "normal" life and I was totally freaked out about getting an infection. I never did........

Have you talked to others on the trial ever?
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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