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Thank you for your support. This is such a complex process. Tonight we learned that he has a resurgence of EBV - the virus that causes mono. His CMV is negative but he is positive for EBV DNA by PCR which is 40,000; they are going to coordinate infectious disease consult next week ...I wish the consult was now but seems like nothing happens on a weekend. They are keeping the Tacrolimus level on the low end but not tapering the steroids further - a hard balance in treating the GVHD of his skin but limiting further immunosuppression which would worsen the EBV.
Does anyone know if there is treatment specific for the EBV and what the risks are??
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