[may34]

My dad has MDS as well. He was diagnosed in 2011 and received a BMT May of 2012. A year after his release from the hospital he still has monthly visits to the University for testing. He tells me he will have to get testing for the rest of his life. As his only child and he my only parent, it is difficult to continue to be strong and positive; treatment does not end with chemo or a BMT. He could pass at any time and we don't know when/if he will be cured. I am not trying to be a debbie downer, just realistic with my personal struggle with this disease. Has anyone found a group or therapy to be beneficial in dealing with emotional stress of this disease and treatment?

Thanks