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Old Mon Nov 27, 2017, 04:46 PM
shellybean shellybean is offline
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Join Date: Nov 2016
Posts: 12
Quote:
Originally Posted by KatailS View Post
Hi shellybean.... our stories sound so similar.... been riding this bus since November 2014 and in a holding pattern of bloodwork every three months. My cellularity was 20% (I am twice your age so this number should be closer to 47%) at my last BMB and all my levels (WBC, RBC, platelets) are low, but holding (I call them my new normal). My telomeres are normal on one subset, low on two and very low on two.... not enough cells to determine the sixth subset. I have the soft diagnosis of moderate aplastic anemia with a small PNH clone (which I understand often happens). Going back up to Dana Farber in May to discuss the findings of the short telomeres and to discuss more targeted genetic testing. Generally speaking, I am in good health and I was in the best shape of my life when they found my numbers dropping. It has been a mental drain for the past couple years, but this forum has really helped stabilize me, knowing that there are others who are like me and others who are dealing with worse yet are so strong and fighting. I hope you find comfort in the support here.... and please do keep sharing. Don't forget to Live, Laugh and Love every day! Keeping you and everyone here in my positive thoughts and prayers.
Extremely late reply, but thank you for your kind message!
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