Thread: 4 Years+ with MDS under control
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Old Sun Jun 8, 2008, 05:06 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by Ruth Cuadra View Post
Hi, Kirby.

It's always good to hear from you and I'm glad to know things are still going well for you with Revlimid. Wouldn't if be great if researchers could study why you are such a good responder and clone that "talent" for other patients?

Regards,
Ruth
This study is still looking for volunteers.

http://clinicaltrials.gov/ct2/show/N...sia%22&rank=13
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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