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Old Wed Aug 24, 2016, 02:12 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Sorry that your SAA is back. It is difficult for people to wrap their head around something that sounds like benign condition. Our family and friends understood mostly because they visited John when he was in the hospital knocking on death's door. They saw how serious this disease is.

For everyone else, instead of trying to explain what SAA is, we would just say he was diagnosed with a catastrophic bone marrow failure disease which means his bone marrow is not making any blood. They understood that better than SAA even if you explained what it was.

Are you able to get any help to care for your husband?
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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