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Fibrogen trial
My husband, David is currently on such a trial with Dr. Raza at UMASS. He's on day 87 of a 113 day trial. He's at the maximum dose (2500 mg), feels awful, nausea, loss of appetite, sharp stomach cramps, and even greater fatigue than he normally has--but he's sticking it out, because whatever results there have been seem to come after the trial is over. He is tansfusion-dependent, every 2 weeks, that hasn't changed--yet.
Judy
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