Thank you so much for letting me know he's not alone! The doc said he never heard of that side effect, so now I feel better. And since it was a rather minor side effect, I didn't push it.
Anyway, his trough is 166 (that's the cyclosporine level just before he's due for his next dose, right?) He takes his meds at 7 am and 7 pm, and takes his shower about 8 pm, so that would explain the effect at higher doses.
I will have him take his shower at a different time and see if that helps.
Again, thank you! These boards are such a Godsend, what did people with these diseases do before the internet? I feel so alone now, I can't imagine if I had
nobody to talk to.
