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Originally Posted by AnnyaT
Has anyone experienced lumps in their groin, under arms etc. perhaps caused by the cyclosporin. They seem to come and go all the time. Also seem to get bladder infections quite frequently.
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Annya, none of these things are commonly associated with cyclosporine, but they could have to do with having a low white cell count. Try to find out what your white count is, and specifically what your neutrophil count (ANC) is. That will tell you a lot. Cyclosporine does suppress some of the lymphocytes, but doctors say that shouldn't pose a major problem as long as you have enough working neutrophils. When the neutrophils get low and you become neutropenic, however, you become susceptible to a wide range of infections and have to take precautions regarding what you eat, who you come into contact with, etc.
Hospitals seem to vary quite a bit as to how long they like to keep you in for treatment. Ours let my husband out the day after his ATG infusions were finished, but I've heard others say they were held much longer for observation. Part of it may depend on how you respond to the serum too.
Take care, and keep laughing.