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Hello and High Risk MDS Advice
Hello! I’ve been reading these forums for several months and just wanted to say that I am amazed and inspired by all the caring and supportive people on this forum who give so much support and advice all while facing their own overwhelming struggles. I wish all of you the very best with all of your treatments and hopes for a healthy future.
I have seen many posts from members dealing with low- or intermediate- risk MDS and members dealing with transplant issues, but not many posts about high risk MDS for whom transplant is not an option and for whom treatment with Vidaza was unsuccessful. My 80 year-old father (MDS RAEB-2, chromosome 7 abnormalities, transfusion dependent, blood counts at dx: Hg = 8, WBC = 1, Plt = 30) is in this situation, and I would love to know how others have managed this scary disease. Thank you in advance for any input anyone has!
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