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My high fevers have gone but I was still having pain & feeling exhausted all the time. My Hb is down due to fevers I think. But I've had a CT scan because of abnormal liver ultrasound. Turns out to not be my liver but my right lung, pneumonia. I'm still at home in pain & coughing now. On stronger antibiotics. Hope I'll be feeling better soon. Been unwell for weeks now. But still not needing hospital so...here's hoping.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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