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Thanks Neil & Birgitta. The funny thing about my blood counts is that they don't show neutropenia. Or even a low white cell count. So these infections I get are...unexplainable.
But they say my cells are obviously not working well. I've had pneumonia twice now. Once in digestive system & now in lung. And fevers of unknown origin. Sorry that I'm repeating myself. I'm just at a loss as to how I have to live with this.
Many people on here talk about transplant as a choice when they are ready. But my Drs are in charge of me. I will only have a transplant when they suggest it's a good time. Wish I knew when that was. I will talk to my specialist again about this. She is on holidays now. See her in January. All I can do is be more aware of being around sick people etc.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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