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I began to feel really unwell on Friday afternoon so went up to the hospital. I'm still here. On antibiotics to prevent further infection. Having blood transfusion tomorrow so that will help me feel better. My Hb only drops with infection.
I listened to the discussion u posted here, Birgitta. Thanks so much. Will keep hanging in there & talking with my specialist. However, frustrating my stuff feels. Nice to talk with people who understand too.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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