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How frustrating when they don't find a cause! The reason I don't go straight to the hospital is that some Drs say things like they don't know why I'm here. I feel like a hypochondriac. I truely feel bad, even when fevers pass. Without a fever, they are more likely to just send u home. The Dr this morning wasn't sure whether to transfused me or not at 87.
I wish I would have told him, it may make me feel a whole lot better! But if they don't & just send me home, have to just live with that. Hard to though. Viruses are just getting nastier. Even for well people. So hard to know what is my MDS & what I just need to suck it up for! Still not feeling good.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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