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I'm feeling much better now & going home today on oral antibiotics. Yay! Just glad i'm feeling so much better! Pain relief has really helped me get through, only paracetamol. Doesn't effect my platelets as far as I can see. I'm.sleeping much better which helps everything. I feel better within myself. I can walk up & down the ward, so preparing myself for lift off!
I'll be staying with a friend for a few days thankfully. Giving myself time to pick up. The Drs have been wonderful! Listening to me & I felt very cared for. So overall the experience has been much better than others. Think I'm starting to accept the chronic nature of the disease. I can manage it.
And another one bites the dust! Thanks for your support xo
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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