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Sorry what Queen song Chirley? I'm a bit slow.
Well I am glad to be home but my inflammation markers are still too high. That would explain my night sweats, even though I can't record a fever. I'm still not feeling great. Trying so hard just to be treated on antibiotics at home. My specialist is happy with that too. Been about a month now being unwell. Hard slog! At least I'm home. And I can contact my specialist, who unfortunately is hours away. But the local hospital has been a great support.
My biggest struggle at the moment is waking up freezing because I'm all wet. But I have my heater & towels & more bed clothes...I'm.doing ok.
Thanks for hanging with me! xo
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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